Press Release


 
On January 19, 2019, Kara James with Kara Smiles Fund, together with representatives from organizations such as Many Faces of Moebius Syndrome, will be conducting a 5K and 1-mile fun run/walk in San Angelo to raise awareness for Moebius Syndrome and funding for the Kara Smiles Fund.


Kara Smiles Fund helps offset the medical expenses for those in need of corrective surgeries related to Moebius Syndrome, and other conditions as cleft lip and Bell’s palsy. Kara James, of San Angelo, TX, was born with Moebius and Poland Syndrome, and at the age of 13 was fortunate to undergo a life changing “Smile Surgery”.


Moebius Syndrome, named after neurologist Dr. Paul Mobius, is a rare congenital neurological disorder which is primarily characterized by facial paralysis, including the inability to move their eyes from side to side, or form even the most basic facial expressions, something many people take for granted.


A “Smile Surgery” is a surgery designed to create a symmetrical smile for those with Moebius Syndrome. Since this surgery is elective, it is not eligible for insurance coverage, and can cost tens of thousands of dollars.


Many Faces of Moebius is a proud supporter of Kara Smiles Fund and helps bring awareness and support to individuals around the world, regardless of age, gender, orientation, ethnicity, religion or status. Several members of Many Faces from around the country will be in San Angelo to support Kara and others in this run/walk.


The run/walk begins at 9am CST at Harman Park (1001 N. River Drive) in San Angelo, TX.  


To learn more about the Fun run/walk, including a current list of sponsors and participants, please visit Karasmiles.org and/or Facebook.com/karasmilesfund. The cost to participate in the event is $25 for individuals 13+ and $10 for kids under 13. Corporate sponsorships are also being accepted and appreciated.  All proceeds go to benefit Kara Smiles Fund. 


January 24 of each year is also Moebius Syndrome Awareness Day (MSAD), a day to celebrate those with Moebius and bring awareness to the condition.  Participants of MSAD wear purple in support of those with Moebius. 


To learn more about Many Faces of Moebius Syndrome, and Moebius Syndrome Awareness Day, please visit www.manyfacesofmoebiussyndrome.org and www.msad2019.org


The public, and media representatives, are welcomed and encouraged to participate this event.


Contacts:  For Kara Smiles Fund,  Kara James (325) 234-6942 or karasmilesformoebius@gmail.com For Many Faces of Moebius:  Tim Smith (540) 219-1248  or tim@manyfacesofmoebius.com  Or: Derek White,  B2B Solutions,  (360) 623-3323 or derek@b2bsolutions.biz


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Countdown to Moebius Syndrome Awareness Day 2019

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